These last couple of nights I have decided to start tube-feeding again. Just overnight rather than being tethered all day. Well last night I woke up sopping wet- the feeding thing popped out and leaked all over my bed. God, what a mess it was, hence being awake last night around 3am. I ruined my like-new pillow top mattress and now I can't feed at night. I'm too afraid its going to come out again. So now I'm tethered again during the day.
Some people have been curious about the surgery and Florida. Well, cat's outta the bag. The insurance company has recommended a surgeon in Florida (not sure why, but they denied my visit to NYC). So, my dad has been in contact with the doctor and it turns out he has done more than 100 of these surgeries, the doctor in NYC had only done 2 or 3. Quite a diffrence! If the referrals get done quickly, surgery can be as early as June. The thing is, we have to fly out to Florida twice, once for the consultation, and again for the surgery. I'm not looking forward to the expenses of travelling, please be praying for me because without any income this is very stressful. I just hope things work out and that they do so soon. Waiting really has been the hardest part.
